Guest Post: Who Needs Social Justice Warriors Anyway?

CN: For medical details, descriptions of pain,

As early ago as two years back, I’d never heard the term “Social Justice Warrior.” The first I heard of it was from a friend. He made those “Pesky SJWs” out to be horrible things, worse than Klingons out for revenge. I didn’t really understand it, and so had no opinion on the matter. But given that I am a non christian liberal and he’s a conservative christian, I felt there might be more to it than meets the eye.

But, well… Too much life happening, and no spoons to research it. And besides, it doesn’t matter. I don’t need someone out there telling me what to do and how to do it. I’m an adult, right? Even when I don’t feel much like adulting.

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Guest Post: Who Needs Social Justice Warriors Anyway?
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Making Peace with my Body

CN: This Post includes mentions of assault, drug use, and body image issues

On May 14th, I finally managed to get my first tattoo. Ever since I was a kid, I had an obsession with drawing pictures on myself. Whenever I was able, I would get henna tattoos of various sorts. I loved the idea of wearing art on my own skin.

Growing up, my parents would appreciate the art, but still disapprove of the whole concept of tattoos. They believed them to be irresponsible, silly, and a waste of money. They made the jokes that have become a social trope, about the hilarity of aged skin and what those tattoos would look like on a senior. It’s not uncommon to hear boomers of all sorts complaining about them and about the people who get them.

Until I was diagnosed with Psoriatic Arthritis and lost major functionality in my legs, I expected to grow up to be a doctor. If not that, I at least expected to be a professional of some sort. I knew that I would be doing myself if I got a tattoo somewhere visible, and so I made myself a deal: I wouldn’t get a tattoo until I turned 25. If I still wanted it by that point, then it was something I truly wanted and could find a way to make it happen.

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Making Peace with my Body

Dismissed By People like You

CN Spoilers for Grace and Frankie, NSFW, Discussions of Sex, Consent, Mentions of Rape

Note: The bottom quote does not include some of the text, but has been edited down to contain the relevant parts of the discussion.

Grace: What are we doing? I’ll tell you what we’re doing. We’re We’re making vibrators for women with arthritis.

Frankie: Yes! Vibrators! Brilliant!

Grace: Oh, grow up. Older women masturbate too.

Frankie: And we have vaginas.

Brianna:  I highly doubt there’s a vibrator market for geriatric women with arthritis.

Grace: There is. I’m in agony.

Frankie: It takes a lot longer for us to get off, Sol.

Grace: She’s right. Our blood doesn’t flow as easily – and our genital tissue is more delicate. I did some reading. The more effort it takes to orgasm, the more you irritate it, and the more it inflames your arthritis. And I mean shouldn’t older women have it better than that?

Mallory: How do I explain to my children that their grandma makes sex toys for other grandmas?

Grace: I’ll tell you what you can tell them, honey. We’re making things for people like us, because we are sick and tired of being dismissed by people like you.

So ends the second season of Grace and Frankie. The line “We’re making things for people like us, because we are sick and tired of being dismissed by people like you.” Seems to me like a perfect summary of the first two seasons of Grace and Frankie. Nominally the show is about two older women relearning how to live on their own after their husbands leave them for each other.

More than that, the show is about two older women realizing the extent to which they have been taken for granted, and the extent to which women past a certain age get treated as invisible and irrelevant. The level to which women’s identities are subsumed into that of their families and especially their husbands.

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Dismissed By People like You

PSA: Don’t Touch Accessibility Devices

Accessibility Devices are, for all intents and purposes, a part of our bodies and should be treated as such.

DO NOT touch an accessibility device WITHOUT CONSENT. In case this is not clear, I mean the consent of the disabled person.

Do not touch a wheelchair without the consent of the person in it.

Do not touch a walker or a cane without the consent of the person using it.

Do not move a walker or cane out of the way, even if the person isn’t using it right now.

Do not push a wheelchair without consent, even if you are just trying to help. Even if you just want to make it easier for them to get up a hill.

Do not put a cane where the person who needs it can’t reach it. It is not funny.

Do not take a person’s prosthetic. It is not funny.

Do not push a person’s wheelchair out of your way, or to make them go faster. If you wouldn’t shove someone out of the way, then consider pushing someone in a chair as the equivalent.

Do not take a person’s hearing aid. It is not funny.

Do not try to make a person’s hearing aid produce feedback.

Do not push someone wearing a hearing aid into a pool, or spray them with water.

Do not touch a service dog. Doesn’t matter how cute it is. Doesn’t matter how small it is. If the dog is wearing his vest or currently working, DO NOT TOUCH THE DOG. (Or Any Other Service Animal)

Do not talk or stare at a service dog – dogs are social and if they are paying attention to you they are not paying attention to their job. They’re trained, but they’re still animals who CAN get distracted.

 Do not put a walker or a cane somewhere else, even if it is not currently being used.

DO NOT try to help by lifting their walker or the person themselves unless asked. If you offer, respect their no.

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PSA: Don’t Touch Accessibility Devices

Understanding Ania’s Weird Body things

I write a lot about my disabilities and illnesses. I’ve discussed what trips to the hospital are like and what a regular day can look like. I’ve shared advice for new patients based on what I’ve discovered myself in the time I’ve lived with them. I have never, however, taken the time to just put together a list of definitions of what those various conditions and disabilities are.

So without further ado, I introduce a glossary of my weird body stuff.  

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Understanding Ania’s Weird Body things

Fear of Menstruation Is Why I Can’t Walk

On my Facebook memories page, I found an old Tumblr picture that includes stories from a series of girls talking about how their appendix burst because they didn’t realize the pain they were feeling wasn’t cramps. The post goes on to explain the difference between menstrual pain and appendix pain. The stories were a way for girls to discuss just how painful cramps can be – that appendicitis, which is known to be extremely painful, was not different enough from their regular menstrual pain to be noticeable.

I had shared the post, along with my commentary that the suggestion to talk to your parents or school nurse about pain, even if it was “only cramps”, ignored the reality of most people who experience menstruation who are told that they are overreacting and to suck it up. Many of us have been told that all women deal with it and that it’s not that bad. Even when my cramps would leave me shaking and with a fever, I was expected to go to class and carry on as though everything was normal. After all “every woman goes through the same thing”. (Not all women actually, and not all people who do are women, but that’s another post for another time). Continue reading “Fear of Menstruation Is Why I Can’t Walk”

Fear of Menstruation Is Why I Can’t Walk

When Depression and ADHD Collide

Ever since I discovered and wrote about the importance of treating ADHD if one also has depression, I have found myself thinking a lot about why this is the case. I’ve floated hypotheses that it has to do with regulating brain chemistry, since both conditions can be caused my imbalances and it is not unreasonable to think that the two might interact in some way.

I was lying in bed, my mind racing and thinking about the dozens of different things that my mind seems to decide must be thought about as I desperately attempt to fall asleep, that I began to think about the many ways that the two mental illnesses present in terms of symptoms. The more I thought about it, the more I realized the myriad of ways that the two reinforce one another. Continue reading “When Depression and ADHD Collide”

When Depression and ADHD Collide

World Toilet Day

Today is World Toilet Day: A fact that seems to amuse a lot of people. Living in North American, it can be pretty easy to take toilets and running water for granted. Bathrooms have become such an integrated part of our daily lives and routines, it can be hard to imagine not having regular access to a toilet. Perhaps on a camping trip, or in a particularly deserted area of town one might be inconvenienced temporarily, but on the whole most of us have a reasonable expectation of having access. As such, it might come as a shock to learn that 1 in 3 people in the world, do not have safe and adequate access to toilets or running water.

Running water and the flushable toilet were not just breakthroughs in convenience and comfort. The development of the toilet meant serious progress in overall public health.

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World Toilet Day

Crohn’s cause by Evil Eye; Cured by Unicorn Tears

One of the most annoying things we face as people with chronic illnesses is people who decide they know how to cure us, while having no idea what we are going through. People who don’t realize how condescending their advice ends up being, and frequently how wrong or even dangerous it is. The constant need to give advice or to become the recipient of every single article on the subject of our conditions is something a lot of us put up with, if not actively struggle against.

Most of the time, the urge is spurred on by good intentions. So it gets me particularly angry when it is the failure of science reporting that is the cause of the most recent flood of misinformation being pushed my way.

In the last two months, Crohn’s Disease has trended on Facebook twice: once to brag that a vaccine against Crohn’s has been discovered (it hadn’t) and once to let everyone that they’ve discovered what causes Crohn’s (they haven’t).

In both cases, the articles were written in a way that suggests that the authors (or their editors) had no real understanding of science. That or they willingly inflated a story knowing it was fraudulent, and supported their claims with information that appears significant when it isn’t.

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Crohn’s cause by Evil Eye; Cured by Unicorn Tears

Bathroom Matters

I know almost immediately that it is going to be a bad one. It’s always preceded with this pain that happens just below my tailbone. It’s not pain exactly, but it’s the closest description to the sensation I have. Sometimes, it happens after a fairly severe stomach cramp, sometimes I feel the cramp in my back. I know I don’t have long to find the bathroom.

If I’m at home I just run down the hallway to the bathroom, but if I’m out and about, the search may be more involved. If I’m driving, it means pulling over at the first place that is likely to have a public restroom. Fast food restaurants are the best. They usually have decent bathroom access, and few of them have locks on the door. Sometimes gas stations work, but they’re not always reliable. I pull over and I run inside, and if I have to, I ask to use the restroom.

If I’m not driving, but I am out somewhere, then I run for the nearest public restroom. Chances are I know of several within my vicinity.

I carry a map in my head of where the nearest washroom is, to the best of my ability.

I do this, because I know what it feels like when I don’t find the washroom in time. I know what it feels like to lose bowel control and the feeling of soiling myself. The whole experience is unpleasant. Although the spasms in my bowels prevent me from being able to stop it, it doesn’t mean that it comes without pain. The always sensitive skin of my bum will often burn or sting.

Then there is the burning sensation of embarrassment.

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Bathroom Matters