I NEED YOU TO STAND WITNESS

CN: mentions of suicidal ideation

For the last little while, I’ve been struggling quite a bit. I’ve been trying desperately to fix the situation I was left in last year. I’ve been just barely getting by with help from friends, by taking out more debt, and by surviving off of stores I’ve had sitting by just in case.

Rather than getting any easier however, things have just been getting worse. My roommate had to move to BC for work and while I was able to find someone to take over his room, the rental agency had issues with him replacing my former roommate on the lease. I couldn’t very well leave my old roommates name on it, and my own financial situation means they are not willing to have it be in my name alone.

As such, I had to give my notice for the end of summer.

I knew the rental situation in Ottawa had gotten worse in the years I’ve been living at this place, but even so I was unprepared for the reality I am facing. The rent costs have skyrocketed to such a point, where $300 over what disability considers a reasonable housing allotment gets me a room in a house with six other people, and I can forget about the house being accessible, meaning I have no idea what to do with my wheelchair, let alone how to be able to live in a place I can’t physically navigate.

Essentially, the way things stand right now, at the end of August I am homeless.

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I NEED YOU TO STAND WITNESS
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Let’s Chat: Ignoring Community Input on Strategic Priorities for the OPS

On Saturday July 14th, I signed up to attend a community consultation on Strategic Priorities for the Ottawa Police Service for the coming years. I attended at the request of a friend, an anti-torture activist who is desperately trying to convince the police force to stop the new policy that would give a taser to every police officer in Ottawa.

I agreed to attend not just because she asked me too, but also because for some time I’ve been thinking of ways to improve accessibility in Policing. Also, because I wanted to be a white face bringing up racism against people of colour.

Institutional Racism in the force is a problem that is starting to be talked about by more people not directly influenced by it, as it should, and is a major issue that needs MORE attention than it is currently getting. A related issue however is Institutional Ableism.

A recent review of fatal police interactions in Canada shows that most people killed by police are disabled. Something like 72% of those killed in police interactions were shown to be mentally ill or to have substance abuse problems, which is itself also considered a mental health issue.

In the US, 1 in 2 people killed by cops is disabled.

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Let’s Chat: Ignoring Community Input on Strategic Priorities for the OPS

Ableism Kills

A while back, I wrote a post begging the Canadian Government to open it’s borders to Americans with Disabilities as refugees from a slow-motion genocide. Someone left a comment on that post to which I’ve been meaning to respond for a long time.

CYNTHIA: I had previously mentioned this to Michael.

Reluctantly, as a fellow Canadian, I cannot fully support this.

As you know, the United States has 10x the population of Canada. It is a first-world country.

There is no way that the math works for Canada to be able to support the complex heath care needs of Americans with pre-existing conditions. As you mention, the system is already at capacity when it comes to providing proper health care with disability support programs for Canadians. No system can function unless you have a large base of relatively healthy people paying into the system to cover the costs of those who are using it more.

Of course, in a situation of someone being a genuine refugee from any country, humanitarian considerations should come into play. That can’t be extended to American “medical costs refugees”, though, because it would break our system.

In the long run, Canadians need a system that is sustainable – and ultimately, that benefits all Americans as well. Americans are looking at us to see how our single-payer system is functioning. If it works relatively well, that increases political support for it. If it doesn’t, that increases the dire warning about “socialized medicine”. The most vulnerable Americans ultimately need an American health care system that works, and they are less likely to get it if the Canadian health care system breaks or if ordinary American voters stop fearing the consequences of repealing Obamacare because they think that free health care will always be available to them in Canada. Right now, that fear has managed to stop the repeal attempts, to the benefit of all Americans who will ever need health care.

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Ableism Kills

Foot In the Door: The Rise of Nazi America

Text: The Rise of Nazi America, showing an American Flag where the stars are swastikas and behind the red bars of the flag are the silhouettes of two imprisoned children
It starts “innocently” enough.

Someone carves a swastika into a school desk or draws one inside a textbook. They don’t understand the symbolism. They don’t understand the horror, the pain, the death, that was brought about as a result of that symbol. They’re just trying to be edgy.

Youth of all stripes make the news when they joke at doing the Nazi salute or dress up in Nazi costumes, even those in the public eye like Prince Harry take their turn at parading around the costume. To them it’s just a joke. They never experienced what it was like to face a world where Nazis didn’t just exist, but wielded terrifying power.

It isn’t long before comment sections explode with the use of racial slurs. Words that were considered egregious social faux-pas are used like common expletives. They’re just kids enjoying the power of anonymity. They’re basement dwellers making themselves feel better by pretending to more power than they have and living fantasies of superiority.

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Foot In the Door: The Rise of Nazi America

I can’t just put my disability on hold

title over abstract photo
For the last year or so, I have been basically living out of boxes.

Alyssa’s and my breakup took place right in the middle of my attempts to rebuild my office. I had to halt construction and rethink how to reorganize the smaller bedroom from being an office into being an office bedroom. Then as our actual separation approached, things were packed away and divided. I’ve been struggling for the past year to put everything back together; my room, my apartment, my life, myself.  ‘

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I can’t just put my disability on hold

What Are the Chances?

CN: Discussion of Statistics in relations to disability, other social issues, sexual assault, and abuse.

There are times when I am talking to someone about my life- about the fact that I’m scared of new proposed laws making it harder for me to survive in Ontario, or about how I’m one particularly unlucky day away from being homeless – when I get the feeling like the person I’m talking to thinks I’m exaggerating. They get this look on their faces that makes it clear they’re just humoring me by not pointing out how ridiculous I’m being. Meanwhile, I’m already minimizing how severe my situation is out of fear of being accused of exaggerating. Worse still, my circumstances are relatively minor compared to that of many of my friends and readers. 

When they don’t automatically dismiss what I’m saying as being hyperbole, the people I speak with assume that my case is rare – an exception. A circumstance not worthy of planning against because it’s unlikely to happen again. And yet? Every day I meet someone new in the same type of situation I find myself in. It’s become so textbook, some people look at me as though I’m performing magic when I manage to guess the ridiculous circumstances they find themselves in or repeat almost verbatim what they’ve heard from doctors, therapists, or other people.

It’s a matter of framing, of perspective.

To someone in the mainstream, what is happening to me must be the result of either something I did wrong, or something extremely rare, or impossible. It seems like the probability of all the things going wrong that go wrong happening seem impossible.

What are the chances that every relationship you’ve been in is abusive?

What are the chances that so many of your doctors end up incompetent? That so many doctors end up holding biased opinions?

What are the chances that everyone around you is so terrible? Doesn’t it seem more likely that you are the problem? Statistically speaking that is?

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What Are the Chances?

Guest Post: From quack to quacked, Quark to quarks: A journey to invisibility.

(Note from Ania: This post by Sophie was written with the assistance of a speech to text tool. There may be some typos, which I haven’t been able to correct yet.  I will come back and edit them as soon as I have the spoons to devote to it.)

We live in a world of experts. Scientists. Astronauts. Doctors. Computer programmers. Politicians. Teachers. Husbands. Wives. Parents. Men. Woman. All the people. Everyone you see around you is an expert in their field, even if we all haven’t gone through higher education to obtain a degree.

But you don’t need a degree to be considered an expert in your field. In a lot of cases, the people who will know most about a thing are the people living with and dealing with the thing. And for the most part, people accept these masters of the universe in their own chosen specialty.

Parents are masters in parenting.

Women are masters in being women.

Men are masters t understanding men.

Even children are masters at understanding children.

Social justice warriors are masters at navigating the system and assisting people in distress because of the system.

Marginalized people are masters at knowing what it means to be oppressed because of who you are, or what you believe in.

I am sure that you, reading this, are a master in your chosen domain.

But I cannot speak to what it’s like being a part of that domain. And it’s not why I’m here today, writing this. But I did want to make sure before I began that you understood that I SEE you. You are not invisible to me. And I am quite certain that you will have experienced some or many of these things that I want to speak about. I know that your pain is real. But I must focus my thoughts and speak of the things that I personally know, which unfortunately isn’t every single person on earth, much as I wish I could sometimes.

So let me try this again, from the beginning.

Each and every one of us is a master of our own domain. We don’t all have university degrees to tuck in under our belts, but we do all have our passions, and qualifications. Today’s words will focus on one particular subset of the human culture: Being disabled, and the invisibility that too often comes with it. Because while it isn’t the knowledge I would have wanted for myself, it’s what I have become educated on, by means of the circumstances I’ve been thrown in.

It is in that light, in that guise, that I introduce myself to you.

Sophie, Ph.D.
Partially human, Disabled.

Continue reading “Guest Post: From quack to quacked, Quark to quarks: A journey to invisibility.”

Guest Post: From quack to quacked, Quark to quarks: A journey to invisibility.