I can’t just put my disability on hold

title over abstract photo
For the last year or so, I have been basically living out of boxes.

Alyssa’s and my breakup took place right in the middle of my attempts to rebuild my office. I had to halt construction and rethink how to reorganize the smaller bedroom from being an office into being an office bedroom. Then as our actual separation approached, things were packed away and divided. I’ve been struggling for the past year to put everything back together; my room, my apartment, my life, myself.  ‘

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I can’t just put my disability on hold
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What Are the Chances?

CN: Discussion of Statistics in relations to disability, other social issues, sexual assault, and abuse.

There are times when I am talking to someone about my life- about the fact that I’m scared of new proposed laws making it harder for me to survive in Ontario, or about how I’m one particularly unlucky day away from being homeless – when I get the feeling like the person I’m talking to thinks I’m exaggerating. They get this look on their faces that makes it clear they’re just humoring me by not pointing out how ridiculous I’m being. Meanwhile, I’m already minimizing how severe my situation is out of fear of being accused of exaggerating. Worse still, my circumstances are relatively minor compared to that of many of my friends and readers. 

When they don’t automatically dismiss what I’m saying as being hyperbole, the people I speak with assume that my case is rare – an exception. A circumstance not worthy of planning against because it’s unlikely to happen again. And yet? Every day I meet someone new in the same type of situation I find myself in. It’s become so textbook, some people look at me as though I’m performing magic when I manage to guess the ridiculous circumstances they find themselves in or repeat almost verbatim what they’ve heard from doctors, therapists, or other people.

It’s a matter of framing, of perspective.

To someone in the mainstream, what is happening to me must be the result of either something I did wrong, or something extremely rare, or impossible. It seems like the probability of all the things going wrong that go wrong happening seem impossible.

What are the chances that every relationship you’ve been in is abusive?

What are the chances that so many of your doctors end up incompetent? That so many doctors end up holding biased opinions?

What are the chances that everyone around you is so terrible? Doesn’t it seem more likely that you are the problem? Statistically speaking that is?

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What Are the Chances?

GUEST POST: Why It’s Hard to Reveal My Disability to Strangers

By Kella Hanna-Wayne

A dancer on a dark background with title of post in white

CN: ableism, chronic pain

With every new person I meet, I have to gauge just how much to tell them about my disability. I try to be as open as possible about my health issues because I want to reinforce the idea that people who look like me- young, relatively fit, no noticeable limitations- can also be disabled. But being open about my disability means opening myself to potential scrutiny of my body, my diet, my medications, my exercise routine. Any decision I make about my physical health becomes fair game for intrusive questions. Until I get to know a person better, I have to assume they will default to treating me as if my health history is in the public domain.

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GUEST POST: Why It’s Hard to Reveal My Disability to Strangers

Guest Post: Taking the Good with the Bad – A Night at The Opera – Part 2

So, earlier this fall, I had the honour and privilege to attend a showing of “The Phantom of the Opera” at the National Arts Center (NAC) in Ottawa. I was super excited about this. And I tried to keep in mind the positive aspects that came with that night. Taking the good with the bad, one would say.

The tickets were a little expensive… But it’s so rare that Phantom is in town, so totally worth it.

My original date cancelled and I was unable to find someone willing to buy the extra ticket… But my 11 year old niece was happy to attend. (Even if she didn’t repay me the ticket, oops)

I was black and blue as a result of an e-bike crash that week… But I was finally out of bed and able to walk again.

Overall, it promised to be an exciting adventure, and I was really looking forward to seeing my favourite musical live on stage.

Me niece looked absolutely adorable and precious. I had drinks and snacks. We were OUT ON THE TOWN!!!

Continue reading “Guest Post: Taking the Good with the Bad – A Night at The Opera – Part 2”

Guest Post: Taking the Good with the Bad – A Night at The Opera – Part 2

Guest Post: A Night at The Opera: How A Blind Date Got Blind-Sighted By Humanity

CN: Ableism, Threats of Violence,

It’s been a hard week for me. Today was the first day I could walk semi- normally after crashing my e-bike into a car on Thursday.My legs are black and blue. I’ve got whiplash, sore muscles, and have spent the last several days in bed with icepacks at the ready.

I was happy to be feeling better today, because tonight I was going to see “Phantom of the Opera” at the NAC with my 11 year old niece.

Being barely able to move, with my legs looking like a cross between a gorilla and a black and blue elephant, and not to mention that fabric on my legs is extreme agony, I opted to wear some comfortable pants and running shoes. I wasn’t going to risk falling again by wearing heels, or risk having a miserable evening by wearing clothes that hurt my legs, or revealed their startling mosaic of bruised hairy nightmares to the whole NAC. Pants are definitely more respectful.

When we arrived at our seats, sitting directly ahead of me was someone I knew. The person who told me Phantom was in town and one of the reasons I bought tickets for this showing for this specific section. This way I’d have someone nearby that I knew, and my anxiety wouldn’t be as bad. When we get to our seats, I see that she’s there. So far, so good.

I said hello as I sat down. She looks at me with disgust in her eyes. “Really? You couldn’t dress up? This is the NAC, Sophie, you’re an embarrassment.” Well. I’m sure my hairy black and blue legs would have been more so, thank you very much. The safety zone I’d planned on wasn’t going to happen, clearly, but I had a backup plan. I took out my Anxiety Duck. He comes with me to my appointments all the time, and helps keep me calm. Again, my “friend” felt the need to comment: “Really? Put that away. You’re humiliating me.” OK fine. Guess who’s on ignore the rest of the evening.

Continue reading “Guest Post: A Night at The Opera: How A Blind Date Got Blind-Sighted By Humanity”

Guest Post: A Night at The Opera: How A Blind Date Got Blind-Sighted By Humanity

Descolonicemos lo que nos Enseñaron

The following quotes are from a post I’ve seen floating around el facebook, shared among several pages dedicated to my hometown and Puerto Rico in general.

Cuando Puerto Rico estaba bien, los comunistas, los socialistas, los independentistas y los soberanistas gritaban “Yankee go home, we do not need you”. Ahora no se escuchan ni se ven.

Puerto Rico nunca ha estado bien, por eso es que gritamos “Yankee go home”. Porque ellos tienen mucha de la culpa por la cual Puerto Rico esta en problemas económicos.

¿Dónde está el patriota Óscar López y los macheteros con machete en mano cortando árboles y trabajando por la patria? ¿Dónde están los encapuchados de la UPR que no se ven limpiando los escombros en la universidad y las carreteras de la patria? ¿Dónde están los ambientalistos que no se ven limpiando las playas, cortando árboles y limpiando carreteras? ¿Dónde está ese grito de guerra “Yankee go home” que los identifican? 

Apuesto que están ahí, limpiando y colaborando para levantar a Puerto Rico. Y todavia le gritamos al colonizador. Ese hecho no contradice el otro.  

And what’s this:
El presidente interino de la Universidad de Puerto Rico (UPR), Darrel F. Hillman Barrera, exhortó hoy, jueves, a la comunidad universitaria a unirse en trabajo voluntario para rehabilitar el Jardín Botánico, en Río Piedras.

Mira pa’lla. The President of the University of Puerto Rico is asking for student (and other) volunteers to help clean up their botanical garden in Rio Piedras. Metiste la pata bien meti’a, mijo.

But now everyone in Puerto Rico speaks English. Carmen Yulin en representación de la izquierda boricua por cámara y con lágrima en los ojos expresó: “We are American Citizens, we need help.”

Well, I mean we are citizens. Yulín is rightfully calling out the government. So what’s your point? Don’t think I don’t catch the casual sexism of pointing out that Yulín Cruz cried.

Yeah, we know, that’s why we’re here. And we will always be.

We’re American (second class) citizens because one colonizer ceded us to another. I certainly hope we aren’t always a colony. ¿Estas diciendo que porque criticamos a los gringos no podemos esperar que ellos manden la ayuda que es necesaria?

I’ve encountered this type of thinking before. The type that says that if you accept help from the government you can’t complain. So, the poor can’t demand justice because we’re on food stamps? That’s victim blaming bullshit. We didn’t ask to be colonized, but if we are going to be then the United States HAS the ethical and moral responsibility to send help.

“Yankee go home”, fuck yes. But if Yankee is going to keep us as a colony then they need to fucking do their jobs. The United States need to be held accountable. And they will be by the communists, socialists, independents, the sovereignists. Because while we’re busy trying to get our island up and moving; while we’re trying to become free; you’re too busy besandole el culo al gringo. They don’t need to fight us because they can just get us to fight amongst ourselves.

Decolonize your mind. ¡Despierta Boricua!

Descolonicemos lo que nos Enseñaron

My Time is Not Yours to Waste

I just wanted to go to the store, to pick up some things I needed. I decided to take my wheelchair. I won’t lie, I wanted to hatch some Pokémon. I also wanted the chance to browse the hardware store for some odds and ends I need to finish up my room. It was a treat for myself – getting the chance to explore the store more than is otherwise possible for me. I even arranged to borrow a bus pass.

Earlier this week, the temperature dropped and I am still adjusting to the sudden cool air. Additionally I hadn’t really taken into account how the speed of the chair, adds some extra wind to the chill. Either way, I made it to the station, and awaited the weekend bus.

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My Time is Not Yours to Waste