I can’t just put my disability on hold

title over abstract photo
For the last year or so, I have been basically living out of boxes.

Alyssa’s and my breakup took place right in the middle of my attempts to rebuild my office. I had to halt construction and rethink how to reorganize the smaller bedroom from being an office into being an office bedroom. Then as our actual separation approached, things were packed away and divided. I’ve been struggling for the past year to put everything back together; my room, my apartment, my life, myself.  ‘

Continue reading “I can’t just put my disability on hold”

I can’t just put my disability on hold
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What Are the Chances?

CN: Discussion of Statistics in relations to disability, other social issues, sexual assault, and abuse.

There are times when I am talking to someone about my life- about the fact that I’m scared of new proposed laws making it harder for me to survive in Ontario, or about how I’m one particularly unlucky day away from being homeless – when I get the feeling like the person I’m talking to thinks I’m exaggerating. They get this look on their faces that makes it clear they’re just humoring me by not pointing out how ridiculous I’m being. Meanwhile, I’m already minimizing how severe my situation is out of fear of being accused of exaggerating. Worse still, my circumstances are relatively minor compared to that of many of my friends and readers. 

When they don’t automatically dismiss what I’m saying as being hyperbole, the people I speak with assume that my case is rare – an exception. A circumstance not worthy of planning against because it’s unlikely to happen again. And yet? Every day I meet someone new in the same type of situation I find myself in. It’s become so textbook, some people look at me as though I’m performing magic when I manage to guess the ridiculous circumstances they find themselves in or repeat almost verbatim what they’ve heard from doctors, therapists, or other people.

It’s a matter of framing, of perspective.

To someone in the mainstream, what is happening to me must be the result of either something I did wrong, or something extremely rare, or impossible. It seems like the probability of all the things going wrong that go wrong happening seem impossible.

What are the chances that every relationship you’ve been in is abusive?

What are the chances that so many of your doctors end up incompetent? That so many doctors end up holding biased opinions?

What are the chances that everyone around you is so terrible? Doesn’t it seem more likely that you are the problem? Statistically speaking that is?

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What Are the Chances?

Quebec’s Bill 62 puts abuse victims at risk

If you’ve been following Canadian news at all, you might have heard about a new bill that passed in Quebec. Bill 62 which essentially mandates that you cannot access public services, including bus transportation, if your face is covered.

This is just the latest in a history of bills aimed at specifically targeting Muslim women, including the horrible Values Charter and many other suggestions. They parrot similar laws passed in France, also aimed at the increasing number of refugees from Islamic countries.

The bill is racist, plain and simple. It is legislative legitimization of said racism, giving bigots a convenient cover for discriminating against brown people. Yes, Islam is a religion, but the social perception of “Muslim” is of someone with darker skin. Additionally, there is a tendency to presume that all brown people are Muslim. Many Sikh people and Indian people of various faiths have faced discrimination in Canada and the US, with a strong implication that the bigot in question assumes them to be Islamic.

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Quebec’s Bill 62 puts abuse victims at risk

Dear City of Ottawa: Community Kitchens Help Build Communities

Dear Councillor Taylor,

I hope you are well.

My name is Ania Bula. I am one of your constituents living at the A_____ neighbourhood near Bayshore Park. This summer, the city has been working on updating the local Community Fieldhouse to better accommodate the needs of the neighbourhood. In consultation with local community organizations, the city was notified that our community would greatly benefit from having a full working kitchen, which in particular would include a separate handwashing station.  

It has recently come to our attention that the plans were modified by the city and that instead of the discussed kitchen, they are putting in a warming-kitchen only, which does not even include  the separate handwashing station. Continue reading “Dear City of Ottawa: Community Kitchens Help Build Communities”

Dear City of Ottawa: Community Kitchens Help Build Communities

It’s not about the A

One of the many jobs I’ve had is that of tutor. I’ve helped teach a variety of subjects including math, various sciences, and English. Additionally, I have designed and taught smaller classes, and have also helped siblings and friends study and understand the class material. I spent a lot of time thinking about teaching and about what and how we learn.

Growing up was interesting. My parents were relatively new immigrants to Canada, and it was their first experience with the Canadian school system. Much of their approach to education came from the European systems they were raised in. While grades mattered to them, education was about something more than regurgitating back information and facts.  I never realized how lucky I was in some ways for that, until I started hearing students repeating the same idea over and over again: it doesn’t matter what the right answer is, it matters what the teacher thinks it is. The only thing that matters is the grade they get.

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It’s not about the A

PSA: Don’t Touch Accessibility Devices

Accessibility Devices are, for all intents and purposes, a part of our bodies and should be treated as such.

DO NOT touch an accessibility device WITHOUT CONSENT. In case this is not clear, I mean the consent of the disabled person.

Do not touch a wheelchair without the consent of the person in it.

Do not touch a walker or a cane without the consent of the person using it.

Do not move a walker or cane out of the way, even if the person isn’t using it right now.

Do not push a wheelchair without consent, even if you are just trying to help. Even if you just want to make it easier for them to get up a hill.

Do not put a cane where the person who needs it can’t reach it. It is not funny.

Do not take a person’s prosthetic. It is not funny.

Do not push a person’s wheelchair out of your way, or to make them go faster. If you wouldn’t shove someone out of the way, then consider pushing someone in a chair as the equivalent.

Do not take a person’s hearing aid. It is not funny.

Do not try to make a person’s hearing aid produce feedback.

Do not push someone wearing a hearing aid into a pool, or spray them with water.

Do not touch a service dog. Doesn’t matter how cute it is. Doesn’t matter how small it is. If the dog is wearing his vest or currently working, DO NOT TOUCH THE DOG. (Or Any Other Service Animal)

Do not talk or stare at a service dog – dogs are social and if they are paying attention to you they are not paying attention to their job. They’re trained, but they’re still animals who CAN get distracted.

 Do not put a walker or a cane somewhere else, even if it is not currently being used.

DO NOT try to help by lifting their walker or the person themselves unless asked. If you offer, respect their no.

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PSA: Don’t Touch Accessibility Devices

Disability Misery

I’m multiply disabled, by whichever model you use. I am on disability assistance and I live in Canada where I even have access to healthcare. Given all this, you might think that the fact that I still have disability related depression, that I am proof that disability really is misery. That the medical model is right.

I want to make this really easy to understand.

I’m not miserable because I’m in pain.

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Disability Misery

Spherical Cow in a Vacuum

There is this meme that goes around from time to time. There are many variations, but a generalized summary is something along the lines of “I’m a better person than you because I don’t unfriend people whose politics I don’t agree with.” The meme is part of a trend of political apathy where people claim to not care about politics, or just write off the entire institution as being an exercise in futility where all parties are ultimately the same and nothing ever changes. The belief is that politics is nothing more than just theoretical ideas about governance, and not really anything tangible or applicable to the “real world.”

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Spherical Cow in a Vacuum

Make Canada Proud: Disable Genocide

[My dear readers, I come to you with a request. The following letter has been emailed and sent by mail to the Prime Minister of Canada, the Minister of Immigration, Refugees, and Citizenship, the Minister of Sports and Persons with Disabilities, as well as my MP. 

IF YOU ARE CANADIAN: Please post your support of what I’m asking here. That disabled Americans be allowed to immigrate into Canada and receive access to Healthcare as well as become a part of this great nation. 

IF YOU ARE AMERICAN: Please post in the comments about how President Trumps and the Republican Congress and Senates actions have put you or your loved ones at risk in the last few days. I will be including a link to this post in my email. 

ALL READERS: Tweet this to the Prime Minister @CanadianPM] 

January 28, 2017

Office of the Prime Minister
80 Wellington Street
Ottawa, ON K1A 0A2

CC: The Honourable Ahmed D Hussen, The Honourable Carla Qualtrough, Anita Vandenbeld

To the Right Honourable Prime Minister Justin Trudeau,

I’m writing to you as a proud citizen of this country to beg and plead for the lives of my loved ones. Since Mr. Trump’s election many of those closest to me have been scared of what the future holds for them. They belong to various vulnerable communities: trans people, gay people, people of colour, people who belong to non-Christians faiths or no faith at all, and especially disabled people.

In the days since President Trumps inauguration, that fear has turned into outright panic. In just his first week, Mr. Trump has enacted and encouraged policies that will lead to the deaths of millions. His policies show a clear movement towards eliminating the social and physical protections granted to those most at risk for abuse. Continue reading “Make Canada Proud: Disable Genocide”

Make Canada Proud: Disable Genocide

Hey Abled Shits: This Is How We Get State-Sanctioned Mass Murder

Every day seems to bring a new terrifying development in the Orange PEOTUS’ Cabinet of Horrors. Between white supremacists being appointed to important positions by a man calling for the registration of minority religions, climate change deniers being appointed to oversee the environment, and anti-vaxxers being put in positions to determine the safety and implementation of vaccine regiments it can be overwhelming in trying to decide which problem to address first.

Meanwhile different factions are calling for the Cheeto-in-chief’s detractors to tone down their opposition in the interest of cooperation.

I’m scared, and I’m not the only one. Even as I do my best to draw attention to the terrifying rhetoric and the distressing similarities between the events leading up to the holocaust and the current events, I hope that I’m wrong. I spend much of my time wishing for me to turn out wrong. But even as I desperately hold on to the idea that maybe it won’t be as bad as we fear, there is one area in which I am already being proven right.

The next four years are already showing themselves to be potentially fatal for one specific vulnerable population: the disabled.

Continue reading “Hey Abled Shits: This Is How We Get State-Sanctioned Mass Murder”

Hey Abled Shits: This Is How We Get State-Sanctioned Mass Murder