War on Patients

For all the various experiences I’ve had as a disabled person, a long distance move is a relatively new one. I’m lucky in a lot of ways because the place I’ve moved to isn’t completely new. Although it has been 13 years since I’ve lived here, my parents have been here that whole time. As a result, I have access to certain resources that I wouldn’t have otherwise had. Among these resources is faster access to a family doctor – the same one that has served my family since I was a kid.

I’m lucky because that’s not the case for most people. There is currently a pretty significant shortage of Family Doctors or General Practicioners as they’re sometimes called. Your GP is meant to be the point person of your medical care. They’re responsible for managing the big picture of your overall health – receiving updates from all your specialists, all test results, providing referrals to specialists, and in many cases managing the vast majority of your prescriptions.

As part of my move, I had to transfer my prescriptions from Ottawa to here. Since I was using the same chain of pharmacies, I didn’t much foresee a problem. That’s because I didn’t know about a law that prevents pharmacies from transferring prescriptions that are categorized as narcotics. It’s part of the ongoing war on patients masquerading as the various wars on drugs. The problem is that narcotics are the recognized treatment for a variety of different conditions including ADHD. If I needed a refill of my medication, in this case Vyvanse, I would need to find a family doctor and get a brand new prescription.

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War on Patients
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Let’s Chat: Ignoring Community Input on Strategic Priorities for the OPS

On Saturday July 14th, I signed up to attend a community consultation on Strategic Priorities for the Ottawa Police Service for the coming years. I attended at the request of a friend, an anti-torture activist who is desperately trying to convince the police force to stop the new policy that would give a taser to every police officer in Ottawa.

I agreed to attend not just because she asked me too, but also because for some time I’ve been thinking of ways to improve accessibility in Policing. Also, because I wanted to be a white face bringing up racism against people of colour.

Institutional Racism in the force is a problem that is starting to be talked about by more people not directly influenced by it, as it should, and is a major issue that needs MORE attention than it is currently getting. A related issue however is Institutional Ableism.

A recent review of fatal police interactions in Canada shows that most people killed by police are disabled. Something like 72% of those killed in police interactions were shown to be mentally ill or to have substance abuse problems, which is itself also considered a mental health issue.

In the US, 1 in 2 people killed by cops is disabled.

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Let’s Chat: Ignoring Community Input on Strategic Priorities for the OPS

Ableism Kills

A while back, I wrote a post begging the Canadian Government to open it’s borders to Americans with Disabilities as refugees from a slow-motion genocide. Someone left a comment on that post to which I’ve been meaning to respond for a long time.

CYNTHIA: I had previously mentioned this to Michael.

Reluctantly, as a fellow Canadian, I cannot fully support this.

As you know, the United States has 10x the population of Canada. It is a first-world country.

There is no way that the math works for Canada to be able to support the complex heath care needs of Americans with pre-existing conditions. As you mention, the system is already at capacity when it comes to providing proper health care with disability support programs for Canadians. No system can function unless you have a large base of relatively healthy people paying into the system to cover the costs of those who are using it more.

Of course, in a situation of someone being a genuine refugee from any country, humanitarian considerations should come into play. That can’t be extended to American “medical costs refugees”, though, because it would break our system.

In the long run, Canadians need a system that is sustainable – and ultimately, that benefits all Americans as well. Americans are looking at us to see how our single-payer system is functioning. If it works relatively well, that increases political support for it. If it doesn’t, that increases the dire warning about “socialized medicine”. The most vulnerable Americans ultimately need an American health care system that works, and they are less likely to get it if the Canadian health care system breaks or if ordinary American voters stop fearing the consequences of repealing Obamacare because they think that free health care will always be available to them in Canada. Right now, that fear has managed to stop the repeal attempts, to the benefit of all Americans who will ever need health care.

Continue reading “Ableism Kills”

Ableism Kills

Foot In the Door: The Rise of Nazi America

Text: The Rise of Nazi America, showing an American Flag where the stars are swastikas and behind the red bars of the flag are the silhouettes of two imprisoned children
It starts “innocently” enough.

Someone carves a swastika into a school desk or draws one inside a textbook. They don’t understand the symbolism. They don’t understand the horror, the pain, the death, that was brought about as a result of that symbol. They’re just trying to be edgy.

Youth of all stripes make the news when they joke at doing the Nazi salute or dress up in Nazi costumes, even those in the public eye like Prince Harry take their turn at parading around the costume. To them it’s just a joke. They never experienced what it was like to face a world where Nazis didn’t just exist, but wielded terrifying power.

It isn’t long before comment sections explode with the use of racial slurs. Words that were considered egregious social faux-pas are used like common expletives. They’re just kids enjoying the power of anonymity. They’re basement dwellers making themselves feel better by pretending to more power than they have and living fantasies of superiority.

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Foot In the Door: The Rise of Nazi America

I can’t just put my disability on hold

title over abstract photo
For the last year or so, I have been basically living out of boxes.

Alyssa’s and my breakup took place right in the middle of my attempts to rebuild my office. I had to halt construction and rethink how to reorganize the smaller bedroom from being an office into being an office bedroom. Then as our actual separation approached, things were packed away and divided. I’ve been struggling for the past year to put everything back together; my room, my apartment, my life, myself.  ‘

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I can’t just put my disability on hold

What Are the Chances?

CN: Discussion of Statistics in relations to disability, other social issues, sexual assault, and abuse.

There are times when I am talking to someone about my life- about the fact that I’m scared of new proposed laws making it harder for me to survive in Ontario, or about how I’m one particularly unlucky day away from being homeless – when I get the feeling like the person I’m talking to thinks I’m exaggerating. They get this look on their faces that makes it clear they’re just humoring me by not pointing out how ridiculous I’m being. Meanwhile, I’m already minimizing how severe my situation is out of fear of being accused of exaggerating. Worse still, my circumstances are relatively minor compared to that of many of my friends and readers. 

When they don’t automatically dismiss what I’m saying as being hyperbole, the people I speak with assume that my case is rare – an exception. A circumstance not worthy of planning against because it’s unlikely to happen again. And yet? Every day I meet someone new in the same type of situation I find myself in. It’s become so textbook, some people look at me as though I’m performing magic when I manage to guess the ridiculous circumstances they find themselves in or repeat almost verbatim what they’ve heard from doctors, therapists, or other people.

It’s a matter of framing, of perspective.

To someone in the mainstream, what is happening to me must be the result of either something I did wrong, or something extremely rare, or impossible. It seems like the probability of all the things going wrong that go wrong happening seem impossible.

What are the chances that every relationship you’ve been in is abusive?

What are the chances that so many of your doctors end up incompetent? That so many doctors end up holding biased opinions?

What are the chances that everyone around you is so terrible? Doesn’t it seem more likely that you are the problem? Statistically speaking that is?

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What Are the Chances?

Quebec’s Bill 62 puts abuse victims at risk

If you’ve been following Canadian news at all, you might have heard about a new bill that passed in Quebec. Bill 62 which essentially mandates that you cannot access public services, including bus transportation, if your face is covered.

This is just the latest in a history of bills aimed at specifically targeting Muslim women, including the horrible Values Charter and many other suggestions. They parrot similar laws passed in France, also aimed at the increasing number of refugees from Islamic countries.

The bill is racist, plain and simple. It is legislative legitimization of said racism, giving bigots a convenient cover for discriminating against brown people. Yes, Islam is a religion, but the social perception of “Muslim” is of someone with darker skin. Additionally, there is a tendency to presume that all brown people are Muslim. Many Sikh people and Indian people of various faiths have faced discrimination in Canada and the US, with a strong implication that the bigot in question assumes them to be Islamic.

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Quebec’s Bill 62 puts abuse victims at risk

Dear City of Ottawa: Community Kitchens Help Build Communities

Dear Councillor Taylor,

I hope you are well.

My name is Ania Bula. I am one of your constituents living at the A_____ neighbourhood near Bayshore Park. This summer, the city has been working on updating the local Community Fieldhouse to better accommodate the needs of the neighbourhood. In consultation with local community organizations, the city was notified that our community would greatly benefit from having a full working kitchen, which in particular would include a separate handwashing station.  

It has recently come to our attention that the plans were modified by the city and that instead of the discussed kitchen, they are putting in a warming-kitchen only, which does not even include  the separate handwashing station. Continue reading “Dear City of Ottawa: Community Kitchens Help Build Communities”

Dear City of Ottawa: Community Kitchens Help Build Communities

It’s not about the A

One of the many jobs I’ve had is that of tutor. I’ve helped teach a variety of subjects including math, various sciences, and English. Additionally, I have designed and taught smaller classes, and have also helped siblings and friends study and understand the class material. I spent a lot of time thinking about teaching and about what and how we learn.

Growing up was interesting. My parents were relatively new immigrants to Canada, and it was their first experience with the Canadian school system. Much of their approach to education came from the European systems they were raised in. While grades mattered to them, education was about something more than regurgitating back information and facts.  I never realized how lucky I was in some ways for that, until I started hearing students repeating the same idea over and over again: it doesn’t matter what the right answer is, it matters what the teacher thinks it is. The only thing that matters is the grade they get.

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It’s not about the A

PSA: Don’t Touch Accessibility Devices

Accessibility Devices are, for all intents and purposes, a part of our bodies and should be treated as such.

DO NOT touch an accessibility device WITHOUT CONSENT. In case this is not clear, I mean the consent of the disabled person.

Do not touch a wheelchair without the consent of the person in it.

Do not touch a walker or a cane without the consent of the person using it.

Do not move a walker or cane out of the way, even if the person isn’t using it right now.

Do not push a wheelchair without consent, even if you are just trying to help. Even if you just want to make it easier for them to get up a hill.

Do not put a cane where the person who needs it can’t reach it. It is not funny.

Do not take a person’s prosthetic. It is not funny.

Do not push a person’s wheelchair out of your way, or to make them go faster. If you wouldn’t shove someone out of the way, then consider pushing someone in a chair as the equivalent.

Do not take a person’s hearing aid. It is not funny.

Do not try to make a person’s hearing aid produce feedback.

Do not push someone wearing a hearing aid into a pool, or spray them with water.

Do not touch a service dog. Doesn’t matter how cute it is. Doesn’t matter how small it is. If the dog is wearing his vest or currently working, DO NOT TOUCH THE DOG. (Or Any Other Service Animal)

Do not talk or stare at a service dog – dogs are social and if they are paying attention to you they are not paying attention to their job. They’re trained, but they’re still animals who CAN get distracted.

 Do not put a walker or a cane somewhere else, even if it is not currently being used.

DO NOT try to help by lifting their walker or the person themselves unless asked. If you offer, respect their no.

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PSA: Don’t Touch Accessibility Devices