Hey Abled Shits: This Is How We Get State-Sanctioned Mass Murder

Every day seems to bring a new terrifying development in the Orange PEOTUS’ Cabinet of Horrors. Between white supremacists being appointed to important positions by a man calling for the registration of minority religions, climate change deniers being appointed to oversee the environment, and anti-vaxxers being put in positions to determine the safety and implementation of vaccine regiments it can be overwhelming in trying to decide which problem to address first.

Meanwhile different factions are calling for the Cheeto-in-chief’s detractors to tone down their opposition in the interest of cooperation.

I’m scared, and I’m not the only one. Even as I do my best to draw attention to the terrifying rhetoric and the distressing similarities between the events leading up to the holocaust and the current events, I hope that I’m wrong. I spend much of my time wishing for me to turn out wrong. But even as I desperately hold on to the idea that maybe it won’t be as bad as we fear, there is one area in which I am already being proven right.

The next four years are already showing themselves to be potentially fatal for one specific vulnerable population: the disabled.

Continue reading “Hey Abled Shits: This Is How We Get State-Sanctioned Mass Murder”

Hey Abled Shits: This Is How We Get State-Sanctioned Mass Murder
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Mother Teresa and the Ecstasy of Suffering

This is an excerpt from Young, Sick, and Invisible.

The world praised Mother Teresa for her service to humanity since well before her death. Yet we have now seen the publication of several books and studies showing that the praise she has received may have been unwarranted. Her organization raised millions, perhaps even billions, of dollars—certainly enough to build a state-of-the-art hospital that could have either cured, treated, or at least made comfortable the suffering to which she tended. Continue reading “Mother Teresa and the Ecstasy of Suffering”

Mother Teresa and the Ecstasy of Suffering

First Amazon Reviews!

Pictures of First Amazon Reviews. Text below

My Book Young, Sick, and Invisible has it’s first reviews on Amazon.com. I am so excited to hear from people who have read it, and the people who have contacted me to share their stories.

If you’ve had the chance to read the book, please let me know what you thought. I would love to hear from you!.

“I am a person with a chronic illness that has left me disabled. Ania’s book not only perfectly described the facets of living with disability, chronic pain, and chronic illness, she also touched on how it can be for friends and loved ones of such a person. She exquisitely describes in terms anyone can understand – whether they are a patient, friend or loved one of a patient, or just a regular person wanting to learn about the struggles of those of us who are ill. This book was devoured in days and something I feel everyone should read, especially if you know a person with chronic pain, a chronic illness, and/or a disability.” – Kacee L Cole

Continue reading “First Amazon Reviews!”

First Amazon Reviews!

Dear Nintendo: Let My Son Play Pokemon (Guest Post)

The following is a guest post request from a mother who wants to play Pokemon Go with her child, but can’t because of some of the many ways it is inaccessible to people with disabilities. Her identity will be kept anonymous for reasons of safety and consideration. The following is an open letter to Nintendo. 

Hey Nintendo, some people have disabled children who would like to play Pokemon Go.

Even though the premise of your game is awesome, it could be improved upon with more accessibility.

As the parent of an autistic child (who is intentionally keeping things vague for the sake of this post because I’d rather my son disclose information about himself publicly whenever he personally feels it is appropriate to do so and can consent to it) who enjoys playing Pokemon with his mother, and as a mother who grew up playing Pokemon games of her own, the Pokemon franchise has always been one that has allowed us to bond and spend quality time together. I man the controls, and when my son indicates a preference in one or more Pokemon, I try to incorporate those into our team. (Once we attempted to bring the three legendary birds to the Elite Four in LeafGreen because he liked them a lot. That might have been when type disadvantage was best illustrated, bringing three Flying when the first Trainer specializes in Ice. Moving along…) Based on what I’d read about Go, I thought it would be one of the most awesome games ever to play with him when it came out.

And then it came out.

Continue reading “Dear Nintendo: Let My Son Play Pokemon (Guest Post)”

Dear Nintendo: Let My Son Play Pokemon (Guest Post)

That Doggy in the Window

Over the last week, I’ve been taking my girls Tsuki, my 11 year old Schnoodle, and CJ, my 8 month of Chihuahua to the dog park on a daily basis. They love it, they get great exercise, and CJ gets to work on being well socialized with other dogs. Today’s trip was planned to coincide around a tutoring appointment Alyssa had. I would drive her to her appointment, go pick up a free drink from Starbucks, hang out for a bit, before picking her back up again and heading to the park.

CJ the Chihuahua

Grey Schnoodle Looking skeptical
Everything was going as planned until Crohn’s once again got in the way. I had to go to the bathroom, but had both my dogs in the car. Stuck and desperate, I blasted the air conditioning until I parked, then wrote out a quick note for any worried passersby: “Bathroom Emergency. Dogs have fan. Back in < 2 min”. I cracked the two front windows about an inch, enough to let some air flow, but not enough to let my small dogs escape into traffic. In addition, I left the doors unlocked, just in case.

I ran for the bathroom and did my business. From where I was, I could hear it when Tsuki, and then CJ started barking loudly. I finished up as quick as I could, all told about a minute, maybe a minute and a half. As soon as I got out of the bathroom I was accosted by an older woman, who asks me if those are my dogs.

I could already sense that this was about to be trouble, but I answered yes.

Continue reading “That Doggy in the Window”

That Doggy in the Window

How to write a disabled character.

As I work on expanding the diversity of my characters, one idea keeps popping out. How do I write good disabled characters? How do I create something that isn’t a stereotype or falls into a lot of the traps that most media do when depicting characters with disabilities. Even as someone with a disability myself, I struggle with not falling into the same tropes as other people.

With that in mind, I decided to try and put together a guideline of sorts on how to write disabled characters.

Don’t Make Their Super Power Negate their Disability

This is one that I see happen pretty often. A character reveals that they have a disability but it’s ok because their super-power is an enhanced version of the part of them that is “impaired”. For example, bling characters who have their super power be an enhanced version of super-sight. They can use vibrations caused by sounds, or have a connection to the earth, in some way that lets them see what others can’t. In this way their disability becomes an “asset” rather than a burden the way mainstream society expects all disability to be.

The only time the disability is otherwise mentioned is for comedic effect: when they are asked for specifics that their ‘enhanced sight’ wouldn’t let them see. This might be words on a page, pictures on a poster, etc.

The problem with this is that it creates the perception that the only way that disabled characters can be useful is if their disability is completely negated. It plays into the idea that disabled people are on their own useless and burdens.

Continue reading “How to write a disabled character.”

How to write a disabled character.

Children and Disability

Ever since I turned 27, the thought of children has been on my mind. At 28, I am now a year older than my mother was when she had me. I always thought that my life would go a certain way. I would get my degree, get married, start a career, and have a baby. All of this was supposed to happen before I was 30.

Then I got sick, and one by one those dreams went up in flame.

I couldn’t go to medical school. Not only that, but I might even be able to manage a regular job let alone a career.

I got a degree, but unlike I expected my whole life, I am graduating with a bachelor with no idea of when or if I will ever be able to get more.

Some things changed, but not for the worse, just became different. Instead of a husband, I have a wife. The important part of that: the love, the support, the companionship remains the same. We live in Canada for now, which mean marriage for us is possible.

And then there are children. Continue reading “Children and Disability”

Children and Disability

Robbing Peter to Pay Paul

Growing up I used to hear this expression a lot from my singing teacher. It usually meant that I was doing something with my throat or voice which, while sounding good at the moment, could do long term damage to my vocal cords. I’ve been thinking about this expression a lot lately.

Ever since it came up during a discussion with friends. I was explaining how some of my medication I seemed to take in order to deal with the side effects of other medications. The conversation turned into a discussion of side effects and I mentioned how almost all of mine have increased risk of cancer listed. I joked that the meds I were taking risked me dying a slow and painful death, however I take them to avoid dying a slow and painful death now.

I joked that I’m robbing Peter to pay Paul. Continue reading “Robbing Peter to Pay Paul”

Robbing Peter to Pay Paul

Interview for Bi Any Means

I sat down with Trav Mamone of Bi Any Means to discuss my book, my new vlog, disability activism, atheism, and more. You should take a listen if you get the chance.

Listening through the podcast I realized that I accidentally used  an expression I’ve been trying to eliminate from my vocabulary because of it’s ableist implications. A good reminder that even people who care about these issues make mistakes and it is up to us to make amends when we do. To those who were hurt, I apologize and endeavor to do better in the future. Mea Culpa. I’m sorry.

Teal Haired Ania Cartoon blushing and looking apologetic
I’m sorry

As such please note: CN for use of Insane as a pejorative.

Listen to the Podcast Here

Interview for Bi Any Means

11 ways ELITE DAILY used ableism to make a point about relationships.

I understand the impulse towards showing your best self at the start of any relationship. I do and have done it as well. You want the other person to like you and you are terrified that if they find out how flawed you really are, that they won’t.

So you put on make-up and wear your hair down. Maybe you wear a skirt, or that itchy shirt that you look amazing in. You might show a little more interest in something than you otherwise would. You don’t lie, not at all; you just never realized how interesting this actually was.

It is human nature and it is fair to mock it. But then lists like this one come out that point out how the acceptance of “gross” things that mark a committed relationship. I look at that list and the first thing I think is: How nice it must be to be abled.

I am going to borrow the list and instead talk about the ways in which it is ableist as fuck. And So my wonderful readers:

11 ways ELITE DAILY used ableism to make a point about relationships.
((The following list is a direct quote from this linked article and does not belong to me. What does belong to me are the comments between the number.))

“There’s no demanding need to shave.”

Ok so mandatory feminist statement: There is NEVER a demanding need to shave. But let’s talk for now about some of us who enjoy smooth legs, I among them. My decision not to shave has nothing to do with a lack of caring, but rather a decision not to inflict pain on myself.

I have a permanently damaged hip. I cannot bend in a way that makes shaving comfortable. I literally cannot reach certain parts of the leg. This also created a much bigger risk of cutting myself. So I don’t shave except as an occasional treat for Alyssa or myself. This decision had nothing to do with the quality of our relationship. Actually the first time Alyssa and I hooked up, my legs were hairy with several days growth.

“You fart in front of each other.”

This presumes control of bodily function. This presumes that everyone gets to decide if and when they fart. This presumes so much, that many of us don’t get to decide.

“Poop is discussed in any capacity.”

I wish I got to decide, I didn’t. Having an accident in the middle of a midterm made that decision for me. What is worse, is that as early as that happened in our relationship, that wasn’t even the first time the subject came up. People with digestive issues, people with chronic diseases, people who have had bowel resections or live with colostomy bags, people who have had their lower bodies paralysed in such a way as to lower their ability to control their bowel movements, all of these people like me might not get to decide when we start discussing poop.

“You let him pee in the shower when you shower together.”

This presumes that he has control over his urine.

“Morning breath doesn’t gross you out.”

During crohn’s flare ups, I have to make the decision whether it is better to brush my teeth and throw up or whether I shouldn’t brush and as a result not spend my morning throwing up bile. Morning breath is the least of my concerns.

“Sicknesses don’t make kissing off-limits.”

I am immunosuppressed. My partner not kissing me when they are sick has nothing to do with how much I love them or how much they love me. That decision is based on the fact that a two day cold for them could be two weeks of misery for me. It could mean having to postpone my Crohn’s medicine and adding a flare up to things that are wrong with me. Just now I had the flu that lasted for two months. Near the end I couldn’t tell whether it was the virus causing me to throw up or my Crohn’s.

But let’s ignore contagious sickness for a minute, and focus on other definitions of sickness such as say vomiting. I can’t tell when I first threw up in public in front of Alyssa. I do remember the warmth of the hand massaging my back while the other held back my hair. I do remember that we hadn’t been dating that long that the kiss that followed was in any way required.

“Weight gain isn’t a big deal.”

Weight has been my cross to bear for as long as I can remember, and now more than ever it is intimately intertwined with my disabilities. My weight gain, my diet, my exercise are all things that keep me up at night. The implication that it should be a big deal or affect the intimacy of my relationship keeps me up even more. The social perception that fat people like me are not entitled to love is such a pervasive bit of fat shaming that it has formed our whole script surrounding relationships. If you don’t think so, I dare you to watch every episode where a man has to prove his love for his wife by realizing he loves her enough to find her sexy when she gains weight.

“Despite all of this, you actually still find your significant other sexy.”

This is the one that cinches it all. That underlines the problem. Everything on this list is considered gross and unsexy, and all of it can be related to disability. I haven’t listed everything here so as not to be redundant and not because there is one thing on this list that isn’t in some way ableist (and also possibly cissexist, transmisogynistic, sexist, classist, and so forth). These things are considered gross, as are the people who do them.

For many of us with disabilities, these things are a major part of our lives. In other words, according to this list, I am gross. I am unworthy of love. This is just yet another perpetuation of the social idea that people with disabilities are sexless and loveless. It is a lie, a damned lie, and damaging to many of us.

On the day that I received my diagnosis of arthritis, I cried. Nothing major had happened yet. It hadn’t really factored into my life at all yet except as an occasional twinge of pain which pills took care of. I had no idea what was coming. I had no idea that by that time the next year I would be in a wheelchair after several months of walking with a cane. For all intents and purposes, the diagnosis was a name for something that hasn’t really happened yet. It was nothing! And yet, I cried. Why? Because I was convinced that it was this news that would doom me to dying a virgin. That I would never marry, never find love, all because I had a diagnosis that others might find scary.

I wasn’t disabled yet and I already knew what the social script had in mind for me.

And lists like this don’t help. Because they just serve as a reminder to all of us, that us disabled folk better not get too uppity by thinking that we are entitled to being treated like human beings.

11 ways ELITE DAILY used ableism to make a point about relationships.