Have you ever woken up wondering how your government was going to put your life at risk today? Have you had your government propose torturing you on a regular basis as a reasonable way to save money? Have you had your government put your life at risk for daring to need to be admitted to the hospital because of a genetic condition? Have you been told that you are a burden on society and that you are too expensive to be worth keeping alive?
This has been my reality for at least the last month.
(Truth be told it’s been my reality a lot longer than that, but it’s been a lot more obvious the last year.) Continue reading “Dear Ontario: I’m Begging For my Life”
In the last few weeks, the increasingly frequent straw bans have sparked debates across social media and even the news. For those who are unfamiliar, the Straw Bans are a new fad of laws that ban plastic straws in an effort to reduce ocean waste and plastic. The popularity of the law was inspired by a viral video featuring something sad happening to a turtle. Environmentalism is great, so what’s the problem?
The problem is that plastic straws are necessary for the survival of people with certain disabilities. Necessary for Survival. Without them People Will Die.
I wish I could say that that statement marked the end of the matter and the question of whether or not it is worth proceeding. Instead, what’s followed is endless weeks and arguments about whether we’re really sure that’s we will really actually die, and don’t we know that that doesn’t really happen.
While I’m not one of the people directly affected by this ban, I say we because while the specifics here don’t apply to me, I recognize all too well ALL of the arguments that showed up during the debates. They’re the same arguments I’ve faced whenever the subject of any disability accommodation comes up. These same themes form many of the backbones of systemic ableism. They are the arguments that are essentially used to excuse banning people from immigration on the basis of disability, the arguments against raising disability support payments, putting together socialized pharmacy care, building accessible housing, providing easy accessibility, and so on and so forth.
Continue reading “5 Things the Straw Ban Argument Shows us About How we Treat Disability”
There is wet snow falling outside. It is cold. I was out there maybe five minutes and my hands are frozen. I have a friend visiting from the states, and in celebration I decided to make a special dinner and was missing an ingredient or two. Although I can drive to the store, I was dreading the thought of going out there. It took mental fortification before I was actually able to get up and do so.
While I was at the store, there was a gentleman, as bundled up as he could be, parked on a mobility scooter in the middle of the parking lot. He had a cardboard sign that was slowly getting wetter and losing the text as the the wind pelted him with wet snow. The grayness of the day in addition to the snow made him almost hard to see, an uncomfortable prospect given the cars driving around him.
What could possibly possess him to make him willing to sit there, wet and cold?
Continue reading “Yes, this again”
In the last several weeks, there have been several news articles relating to opiate use and changing definitions regarding drug classification and how doctors can prescribe. As usual this has brought a lot of the stigma surrounding medicine use to the limelight. Whenever these conversations get sparked again, a lot of people start talking about over-prescription, abuse of narcotics, and how big bad pharma creates fake conditions in order to sell drugs. People start talking about patients who abuse the system and end up addicted. These conversations are usually had by people who have no personal experience with chronic pain or the type of conditions being discussed. These same arguments then get used to discredit conditions like Chronic Fatigue Syndrome, Fibromyalgia, and ADHD.
The shaming inherent in a lot of these arguments not only make life more difficult for patients, but they are actually an example of how “a little” knowledge is a dangerous thing. Take, for example, the frequent argument that ADHD is often over-diagnosed and an excuse to medicate children. Some people have gone so far as to claim that ADHD meds are the shut up and sit still drug and that ADHD itself doesn’t exist.
The first half of the argument is based on two problematic ideas: the lie of more-diagnoses which I discussed in a previous article, and a tendency by certain studies to limit their focus on white males. While there is some indication that ADHD may be over-diagnosed in white boys, in every other category girls, people of colour, and so forth, the opposite appears to be the case.
In white children misbehaviour is believed to be pathological, whereas in the case of children of colour, it is believed to be genetic and inherent. When behaviours that are believed to be disruptive appear in class, white children are often send to counselors and psychiatrists, while black children in particular are punished. We’ve seen this discussed when activists and studies discuss the school to prison pipeline. In many cases the behaviours being punished are the same that are said to be caused by ADHD in white children. Continue reading “Shaming Med Use Kills”
Growing up I was told it was rude to speak ill of the dead. I was told no matter how horrible the person was in life, we should respect them in death. I never questioned this until one of my grandma’s sisters died.
I got the news about my aunt and I felt like dancing. I thought I was being rude but then I thought, this aunt made my life miserable. Any chance she got, she reminded me how ugly and fat I was. She would tell me I would end up “jamona” (a spinster) because of how unattractive I was. I was 12. My grandma would tell her sister about my “bad behavior” and this aunt would say that what i needed was “un buen puño a la cara” (a good punch to the face). I was 7. She would make my school uniforms and I dreaded being measured. She always had something to say. “Oh, you’re so fat. You’re fatter than I am. It’s a miracle you fit through the door.”
She died when I was in my teens. I remember calling my grandma to offer my condolences. But I lied them. When I went to Puerto Rico, I visited my grandpa’s and another aunt’s grave. I left flowers for both of them. I didn’t ask to see that one aunt’s grave and grandma didn’t push me. I told my mother I was happy tia was dead. I would never say this to my grandmother. Not out of respect for that dead aunt, but for respect to grandma. That aunt never showed any respect to me, so I don’t see why I should respect her because she finally dropped dead.
I firmly believe it is OK and even cathartic to be happy someone died. If that person made your life miserable? Pop open a bottle. That person abused you? Merengue on that grave all you want.
My tia didn’t have any influence over legislation. Her opinions and ideas didn’t have the power to sway a population. Scalia on the other had opinions which hurt a lot of marginalized people. I will not judge anyone who is glad he’s gone. I’m sure no one is going to his family and saying they’re happy he’s dead, and I would never advocate that. But I don’t care for the for the posts I’ve seen chastising the people who are happy he’s dead.
“No hables mal de los muertos, que no pueden responder”. Don’t speak ill of the dead because they can’t defend themselves. Well, when she was alive I tried defending myself from her verbal abuse and I was told I was disrespectful.
Death doesn’t mean that person’s bad deeds are forgotten. Death doesn’t magically erase the pain that person caused. But death does guarantee that I’ll never have to listen to her opinions ever again.