Young, Sick, and Invisible

A few years ago, while in the middle of trying to decide how best to proceed with my disabilities and my employment situation I decided to test the waters of interest by creating an Indiegogo for a book I was contemplating writing.

The book came out this May, and while I wanted to have a post up and a big launch party, I was prevented by my conditions which decided to have their symptoms worsen in the last few months and in particular in the last few weeks. It is my hope that I will be able to be up and about enough to organize the launch party soon.

The book was supposed to be a chance to discuss not only my process of becoming and discovering my disabilities, but also an anecdotal presentation on the predatory nature of CAM Practitioners. It is that, but it also became a chance to discuss a variety of important issues and how they relate to disability and general healthcare.

I wanted, and I think succeeded, to create an account that was fun to read while still giving people an idea of what it is like to live with disabilities in English North America.

Several people donated to the project, from relatively small amounts like $5. I would like to take this opportunity to public thank them for their donation.  The money helped Alyssa and I survive for a few months during an extremely difficult time.

Already I have received touching messages from people who have found solace and companionship in what I have written. Who tell me they want to magnify pages and send them out to the various people in their lives. Hearing from them and seeing the positive reviews from colleagues I highly respect had been incredibly touching.

Hearing my parents, who I was terrified would see the book as nothing but a condemnation of them, tell me that they enjoyed it and found my writing style to be pleasant has left me in a state of some considerable shock.

More than anything though, this book proved to me that I CAN do it. It didn’t silence the negative voices in my head telling me I’m too distracted, too lazy, too unable to follow through, but it did give me a weapon to fight those voices. It gave me a chance to publicize issues that are extremely important and yet often ignored. Like the discrimination in medicine against women and people of colour.

It confirmed for me that I am in fact a writer, that no matter the hardships this decision has created, I made the right decision for me in following writing as a career path. It made it possible for me to finish another book, this one fiction. This month was also the month when I managed for the first time to finish the draft of Hunting Blackbirds.

I hope my readers, and other readers will pick up a copy of Young, Sick, and Invisible, not just because an author always wants her books read, but because maybe my story will help someone else find their voice. Maybe it will change just a little how people treat those of us with chronic illness. I don’t expect to change the world, but maybe I can add my strength to those who are fighting to do just that.

Young, Sick, and Invisible

3 thoughts on “Young, Sick, and Invisible

  1. 1

    It’s an outstanding book! I’m just over halfway through, and I’ve learned so much and gotten all fired up about accessibility. Also ready to go into doctors’ offices, hospitals, and alt med forums and smack some bad attitudes and ideas down. This should be required reading in med school. Anyone who in any way might have any ability to impact folks with disabilities, from politicians to bosses to designers and endlessly on, should read it.

    I’m very, very glad you wrote this. It’s necessary.

  2. 3

    First of all, thank you for bringing attention to the plight & the cause of so many people who- like you & me- are sick and invisible.
    I’m especially glad that you address how CAM practitioners can be predatory when dealing with people like us.
    If I could get back all the money that I spent over the years on CAM treatments that did not work, my financial woes would likely disappear.

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