Musings on Pasta

Today I read an article on the blog, Musings of an Aspie. The title of the article was grabbing: The Importance of the Pasta on the Left. It’s grabbing because I don’t think of pasta, even at it’s most delicious, as important. And why would the pasta of the left be more important than the pasta on the right? And… well, I had to read more. From the article:

Mother: “James, come and let’s pick out some cereal.”

James (appears from around the corner): “But I haven’t finished looking at all the pasta. I looked at the pasta on the right but I didn’t look at the pasta on the left.”

Mother: “We need to pick out your cereal.”

James (sounding panicked, voice rapidly rising into hysteria): “But I need to look at all the pasta! I haven’t looked at the pasta on the left. I need–“

I recommend this article. It’s well written and concise. The focus is on how the mother in this story works with her (likely somewhere on the spectrum) son to reach a compromise that both find amenable, without shaming, judging or punishing him for his ostensibly odd and stubborn insistence on completing his task. The author broadens this exchange to ask friends and family of autistic people to “meet us where we are.”

When you have an autistic family member or friend, you’re going to run into situations that you find hard to understand. There will be times when we’re not where you think we should be or where you wish we were.

When this happens, try practicing a little flexibility. Meet us where we are. You might be surprised at the results.

It’s a good article.

Of course respecting another person’s wants and needs is a handy skill to master in any environment.  But understanding that we don’t always need to understand the specifics of a person’s behavior or what’s driving it – to listen when they tell us they need something and to, if possible, accept that without judgement is, I think, vitally important when we’re interacting with people who are subjected to the kind of stigma that those who are on the spectrum deal with on a regular basis.

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Musings on Pasta
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    as someone who would very likely have been somewhere on the spectrum if it had existed when I was growing up, I have to wonder about the advice to “meet us where we are”, which seems to be to be saying “don’t expect any advancement or improvement”. If no one had expected me to learn how to deal with things and constantly move forward, I wouldn’t have improved with how I deal with people and events. Now, no one would think that I grew up with a lot of the aspects that autistic people have. The feelings are still there, but I’ve learned to deal with them.

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      I found the opposite to be true. I spent too much of my life thinking I just needed to try harder and just learn to “deal with things”. That thinking led to multiple hospitalizations.
      What do you mean by “I grew up with a lot of the aspects autistic people have”?
      Do you have seizures, or stimming, or echolalia? Are you able to speak normally? Do you have physical meltdowns? Do you have a grasp of time?
      Autism isn’t a feeling you have. It’s a disorder you manage. The limitations don’t go away because you learn coping skills, not that those skills aren’t valuable or helpful. Disabilities don’t go away if you try hard enough.
      I think telling people with disabilities to toughen up and figure out how to ‘act normal’ is cruel and harmful. It was certainly devastating to me.

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